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  My name is Betty Fleming.  My husband is Michael.  We have four children; Kristen 12, Stephen 11, Elizabeth Diana (Nana) 9, and Mary 8.  Nana was diagnosed with WHS

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My name is Caitlin and my husband Jeremy and I have one daughter, Ramona, who has Wolf-Hirschhorn Syndrome. Ramona is 5 years old and continues to make great progress, more

  Hi, my name is Denise Barnes and I am a proud mom of my two children Caroline Guillen (Aug of 2000) and Emilio Guillen (May 1997).  We live in

My name is Laurie, and I am excited to take on the role of Regional 1 director. I live in Jackson, NJ and am the married mother of three. My

My name is Jackie and I was blessed with my daughter, Anna, on July 9, 2002. I was told she had Wolf-Hirschhorn Syndrome when she was diagnosed at 12 days

Hello my name is Bryan Binstock and I am the proud father of Nathan, who is 13 years old and has Wolf-Hirschhorn Syndrome. I am married to Bridget and we

Hey, my name is Tad Tidwell and my wife Sarah & I are proud parents of Paisley. Our little girl Paisley was diagnosed with the rare chromosome deletion syndrome, 4p-