2011 Bio Form
bio form – updated 2011
About Caitlin
My name is Caitlin and my husband Jeremy and I have one daughter, Ramona, who has Wolf-Hirschhorn Syndrome. Ramona is 5 years old and continues to make great progress, more
About Denise
Hi, my name is Denise Barnes and I am a proud mom of my two children Caroline Guillen (Aug of 2000) and Emilio Guillen (May 1997). We live in
About Laurie
My name is Laurie, and I am excited to take on the role of Regional 1 director. I live in Jackson, NJ and am the married mother of three. My
About Jackie
My name is Jackie and I was blessed with my daughter, Anna, on July 9, 2002. I was told she had Wolf-Hirschhorn Syndrome when she was diagnosed at 12 days
About Bryan
Hello my name is Bryan Binstock and I am the proud father of Nathan, who is 13 years old and has Wolf-Hirschhorn Syndrome. I am married to Bridget and we
About Tad
Hey, my name is Tad Tidwell and my wife Sarah & I are proud parents of Paisley. Our little girl Paisley was diagnosed with the rare chromosome deletion syndrome, 4p-
About Jim
Hi, my name is Jim Shellenberger and my daughter Karly has WHS. Karly was born in 2005 and was diagnosed in January of 2007 (age 14 months). My wife Jennifer
About Felicia
Hello! My name is Felicia van Dyk and I am honored to be a Board Member of the 4p- Support Group. I live in the Los Angeles area with my
About Susan
Immediately after his birth, our doctors told us that something was wrong with our son. Within 24 hours, several more doctors were introduced to us – each providing worse case