We are now taking pre-orders for our new Wolf-Hirschhorn Syndrome awareness car magnets. A discounted price is given for orders of 3 or more magnets! […]
WHS Awareness Car Magnets – Reserve Yours Now! Read More »
We want you to know about an opportunity to participate in a research study. Our group is collaborating with Drs. Amy Calhoun and John Carey at the University of Utah,
Participants Needed for Growth Research! Read More »
We’re excited to announce a fundraiser with The Jewelry Chicks. Money raised through this fundraiser will be used towards our 2012 National Conference, specifically towards the sibling activities we
Custom 4p- & Wolf-Hirschhorn Jewelry Fundraiser Read More »
Do you want to get really close to some amazing animals? Would you like to touch some of your favorites? Then join us on a Silly Safaris Friday, July 20th
Silly Safaris Show – July 20th Read More »
My husband Matt and I attended the conference in Utah this summer with our son Frank, who was eight months old at the time. We were “first-time” attendees and were
Reflections of our First 4p- Conference – 2010 Read More »
You won’t believe what I‘m about to share with you, I barely do! My husband, daughter Elizabeth and I went out to lunch yesterday, a place we go to once
An Amazing Connection Made Read More »
cookie for a koz! 4P- Support Group Holiday Fundraiser, 10% of purchases will go to our group! This season we’re partnering with Cookies for a Koz, in a fund
As the mother of a child with Wolf-Hirschhorn Syndrome, I experienced most of the emotions possible in parenting Craig over a 25-year period, including shock, sadness, confusion, fear, crisis, overwhelming
Craig Richardson: A Life Worth Living, With Disabilities Read More »
*This article appeared in our August 2011 newsletter. I first became involved with the 4p- support group right at the end of my first year of fellowship in Medical Genetics
A letter from Dr. Calhoun Read More »
*Article appeared in our June 2011 newsletter. Hello fellow 4p- families! I wanted to share with you how my son Dylan has benefitted from water therapy. We purchased the Water
Summer Fun in the Pool with Dylan! Read More »