Featured Articles

                  In order to spread more awareness about our event and 4p- syndrome, we are opening up the artwork, created by individuals […]

The International 4p- Patient Registry online portal is now open for enrollment! To enroll, click here.

Dear families and friends in the 4p- community, We are thrilled to announce a very important step in advancing the research and care of individuals with 4p-. After many years

Unique Family Genes By Eva Viera Family in the early years of my childhood was very non-traditional, dysfunctional, and yet I would not know it until I turned around 8

My name is Leanne and my son Justin (above) will be 26 years old this month. 26 years ago there was no support for WHS. My first contact was Becky

*Article appeared in our 3rd Quarter 2011 Newsletter. Elijah’s Promise Kristy P. Kulski-Ingram People tend not to know what to say when they find out about Elijah – and I

*Article appeared in our 3rd Quarter 2011 Newsletter. Elijah’s Promise Kristy P. Kulski-Ingram People tend not to know what to say when they find out about Elijah – and I

*Article appeared in our 1st Quarter 2013 Newsletter. The 4p- Support Group’s mission is to improve the access to 4p- information to parents, family members, and care providers of individuals