The 4p- Support Group is excited to share that, by filling out the updated CoRDS 4p-/Wolf-Hirschhorn syndrome survey, you will be eligible to win 1 of 5 $100 Amazon gift cards. […]
Win 1 of 5 $100 Amazon.com Gift Cards by Participating Read More »
Take the 4p-/Wolf-Hirschhorn Syndrome Patient Survey! Research is key. The 4p- Support Group is thrilled to announce the updated 4p-/Wolf-Hirschhorn syndrome survey created in partnership with the Coordination of Rare Diseases
CoRDS Registry – Updated Patient Survey Read More »
As a continued tradition at our National Conference and Kammy’s Kause, we will be remembering and celebrating individuals with 4p- who have received their wings. The memorial ceremony at Kammy’s
WHS Awareness adult hoodies, adult 3/4 sleeve tees and youth 3/4 sleeve tees now available! Order HERE
4p-SG Online Store Read More »
Support the 4p- Support Group during the Season of Giving! AmazonSmile is a simple and automatic way for you to support the 4p- Support Group every time you shop, at
We are so excited to share this with you all!!! This year
2016 4p-/WHS Awareness Day Read More »
Exciting News! 4p- Support Group has partnered with researchers from the University of Utah and Lineagen, Inc. to evaluate the effectiveness of different seizure treatments for people with WHS. Approximately
Research Participants Needed! Read More »
Lineagen Announces Identification of New Genetic Region Associated with Seizures in Wolf-Hirschhorn Syndrome. Click here to read full press release and research article.
Join the “Rock What You Got” movement! Shirts are $15/each and 50% of the proceeds from each sale will
Rock What You Got T-shirts Read More »