The mission of the 4p- Support Group is to improve access to 4p- information to parents, family members and care providers of individuals who have a 4th chromosomal abnormality (Wolf-Hirschhorn Syndrome is the main syndrome).
This web site was established to assist members in locating resources, communicating with one another, educating themselves on issues relating to 4p- and related syndromes, and participating in other informative activities.
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Board of Directors
If you wish to contact any of our board members directly, click here to contact our support group.
President
Sylvia Renfro
Vice President
Varsha Daryanani
Secretary
Morgan Elliston
Former Executive Director (2014-2022) and Past President (2008-2014)
Amanda Lortz
Director At Large
Teale Denzer
Director At Large
Haley Bell
Regional Directors
Region 1
(ME, VT, NH, CT, PA, DE, MA NY, RI, NJ, QC, NB)
(ME, VT, NH, CT, PA, DE, MA NY, RI, NJ, QC, NB)
Cheryl Donovan
Region 2
(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)
(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)
Nikole Walker
Region 3
(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON)
(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON)
Autumn Coffey
Region 4
(TX, LA, OK, AR, MO, KS, CO)
(TX, LA, OK, AR, MO, KS, CO)
Amy Hauck
Region 5
(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)
(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)
Michael Paruch
Region 6
(HI, CA, AZ, NV, NM)
(HI, CA, AZ, NV, NM)