The mission of the 4p- Support Group is to improve access to 4p- information to parents, family members and care providers of individuals who have a 4th chromosomal abnormality (Wolf-Hirschhorn Syndrome is the main syndrome).

This web site was established to assist members in locating resources, communicating with one another, educating themselves on issues relating to 4p- and related syndromes, and participating in other informative activities.

our history

Ready to become a member?

Join Us

Board of Directors

President

Sylvia Renfro

Send Email
Vice President

Varsha Daryanani

Send Email
Secretary

Morgan Elliston

Send Email
Treasurer

Stephanie Benson

Send Email
Former Executive Director (2014-2022) and Past President (2008-2014)

Amanda Lortz

Send Email
Director At Large

Position is Open

Send Email
Director At Large

Position is Open

Send Email

Regional Directors

Region 1

(ME, VT, NH, CT, PA, DE, MA NY, RI, NJ, QC, NB)

Cheryl Donovan

Send Email
Region 2

(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)

Nikole Walker

Send Email
Region 3

(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON)

Autumn Coffey

Send Email
Region 4

(TX, LA, OK, AR, MO, KS, CO)

Amy Hauck

Send Email
Region 5

(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)

Michael Paruch

Send Email
Region 6

(HI, CA, AZ, NV, NM)

Denise Barnes

Send Email
Donate