Beyond the Textbooks for Wolf-Hirschhorn Syndrome: Lessons for Prenatal and Pediatric Genetic Counselors
Co-hosted by NSGC’s Prenatal Counseling & Ultrasound Anomalies and Pediatric & Clinical Genetics Special Interest Groups (December 11, 2012)
Webinar on WHS for Genetic Counselors
January 16, 2013 By 2 Comments
To all the contributors of this video,
I completely enjoyed watching this video, what a great compilation of photos, information, detail and personal experiences of other parents. I sometimes find myself feeling quite alone, living with WHS and the issues and obstacles we meet but this video is a reminder of how that is not true, I am not alone. It’s also a reminder of how much I am grateful for, one being this support group. I am asked often by family, friends, medical professionals, etc., about Elizabeth’s syndrome and this video describes much about the syndrome in a way that everyone can understand. I can’t wait to share this with family, friends and Elizabeth’s wealth of doctors, therapists, geneticist, etc. Again, I am very appreciative to all of you for your time and effort into making this video and having it be a very informative guide into WHS.
Sincerely and gratefully,
Yin.
Elizabeth Yung, October 2008
Hong Kong
Hallo Im an old parent to a littel woman of 19 with wolf syndrom from denmark- just disgovered this page.