Membership

Para informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes a (818)468-8671 o region6@4p-supportgroup.org.  Gracias.

The 4P- Support Group is a membership owned and operated 501(c)(3) organization.   Membership is free.  Only parents and legal guardians of children with 4th chromosomal abnormality are eligible for membership.

Membership entitles parents and guardians to:

  • have access to our private, online BigTent Community,
  • opportunities to participate in research,
  • the Wolf-Hirschhorn Syndrome, 4p- : A Guidebook for Families (digital format).  This is a wonderful resource for doctors, therapists, and family members,
  • E-newsletters and organization updates,
  • and more

To request access to our BigTent community and membership information along with a new family packet, please complete our New Member Request.  Once received, our Membership Chair will contact you with additional information.

Those who would like to receive a printed copy of our quarterly newsletters are asked to make an annual payment of $5 a year to offset printing and mailing newsletters.  Contact membership@4p-supportgroup.org to make arrangements.

 

If you are already a member and need to update the contact information we have on file such as your address or email address, please complete our existing member update form.  You will be notified once it has been received.

If you have questions about membership, please contact membership@4p-supportgroup.org.  Member information will not be shared with anyone other than the 4p- Board of Directors without authorization.  Information is placed in our member database to enable the 4p- Support Group to notify members of gatherings, conferences, and other events.  General data is also placed in the International Registry in order to keep an accurate count of the number of children born with 4p-.  Refer to our privacy policy for more information.

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