SHOW YOUR SUPPORT BY WEARING JEANS ON APRIL, 16TH FOR 4P-/WOLF-HIRSCHHORN SYNDROME!!! You can even choose a pair with a hole in them to symbolize the missing material in 4p-!!! And don’t forget to wear your wristbands and favorite 4p- t-shirt!
International 4p-/Wolf-Hirschhorn Syndrome Awareness Day was established through the collaborative efforts of the national registered charity organizations who support those living with and affected by 4p- syndrome through every stage of life, to focus the spotlight on this genetic disorder.
4p- Support Group (North America) www.4p-supportgroup.org
Asociacion Española del Sindrome Wolf-Hirschhorn (Spain) www.wolfhirschhorn.com
Associazione Italiana sulla Sindrome di Wolf-Hirschhorn (Italy) www.aisiwh.it
Australian Wolf-Hirschhorn Syndrome Support Group www.awhssg.org.au
Wolf-Hirschhorn Syndrome Trust (United Kingdom and Ireland) www.whs4pminus.co.uk
Para los recursos y plantillas en español, por favor visitehttp://wolfhirschhorn.com.
We are asking you to join us in our efforts to generate awareness and understanding of 4p- syndrome, a very rare genetic disorder. By doing so, you will be helping our initiative to bring awareness about this complex syndrome and to help save lives! We ask that you join our International 4p-/Wolf-Hirschhorn Syndrome Awareness Day by:
-Spreading awareness in your local community. (A LIST OF IDEAS CAN BE FOUND HERE)
-Using our Awareness Day photo collage as your Facebook cover photo (Photo found HERE.)
-Having an Awareness Day profile picture created using a photo of your loved one. (Templates found HERE.)
-Sharing our Facebook event page with your friends and family https://www.facebook.com/events/654124971322758/
Please visit the websites listed above for more information about the syndrome and our organizations.