Scientific Advisory Board

“I have enjoyed being a resource for families and also for clinicians around the country, emphasizing that this is NOT a terminal disease and that our patients do well with good medical management. I truly appreciate the willingness of our families to share their experiences with me so that I can relay these experiences to other families and clinicians.” -Amy R.U.L. Calhoun, MD

Chair:

Amy R.U.L. Calhoun, MD

Assistant Professor of Pediatrics

University of Minnesota Medical School

Minneapolis, Minnesota

 

Co-Chair:

John Carey, MD, MPH

Professor of Pediatrics

University of Utah School of Medicine

Salt Lake City, Utah

 

Members:

Agatino Battaglia, MD, DPed, DNeurol
Adjunct Professor of Child Neuropsychiatry
University of Pisa
Pisa, Italy;

Adjunct Professor of Pediatrics
University of Utah School of Medicine
Salt Lake City, Utah;
Adjunct Professor of Pediatrics
University of South Dakota Sanford School of Medicine
Sioux Falls, South Dakota

 

Sarah South, Ph.D., FACMG
Medical Director, ARUP Laboratories
Cytogenetics, Microarray, Genetic Processing
Assistant Professor, Dept. Pediatrics and Pathology
University of Utah
Salt Lake City, UT 

 

Oliver W.J. Quarrell, MD, FRCP

Consultant in Clinical Genetics

Department of Clinical Genetics

Sheffield Children’s Hospital

Sheffield, UK

 

Peter Hammond, Ph.D.

Professor, Molecular Medicine Unit

UCL Institute of Child Health

London, UK

 

Gene S. Fisch, Ph.D.

Senior Biostatistician

Research Professor,

Dept. Epidemiology & Health Promotion

NYU Colleges of Dentistry & Nursing

NY, NY

 

Hayat Mousa , MD, FAAP

Medical Director, Center for Advanced Research in Neuromuscular Gastrointestinal Disorders (C.A.R.I.N.G)

Director, Fellowship in the Advanced Training in Gastrointestinal Motility and functional Disorders

Associate Professor in Clinical Pediatrics, Ohio State University College of Medicine

Nationwide Children’s Hospital, Division of Gastroenterology

Columbus, OH

 

Christine Hills, MD

Pediatric Cardiology

Children’s Heart Clinic

Minneapolis, MN

 

Virginia S. Nelson, MD, MPH

Professor, Department of Physical Medicine and Rehabilitation

Director, Pediatric and Adolescent Rehablitation
Medical Director, Pediatric Neurorehabilitation Day Treatment Program

University of Michigan Health System
Ann Arbor, MI

 

L. Miriam Pina, MD

Director Clinical Development

Sanofi Pasteur Inc.

 

Samuel D. Maldonado, MD, MPH, FAAP

Vice President

Janssen Research & Development

Pediatric Drug Development, Center of Excellence
Raritan, NJ

 

Melissa Fuller, M.S., C.G.C.

St. Louis, MO

 

Christine N. Kleimola, M.S.

Ypsilanti, MI

 

Rebecca Richardson, RN, BSN

Woodbridge, VA

 

Liason:

Amanda Lortz
President
4P- Support Group