Comments for 4p- Support Group http://4p-supportgroup.org Wolf-Hirschhorn Syndrome Wed, 11 Apr 2012 22:42:57 +0000 hourly 1 http://wordpress.org/?v=3.1.3 Comment on Participants Needed for Growth Research! by Rachael http://4p-supportgroup.org/growth-research/#comment-65 Rachael Wed, 11 Apr 2012 22:42:57 +0000 http://4p-supportgroup.org/?p=1575#comment-65 Our WHS daughter in NZ is growing really well since starting growth hormone at 3years. She's now 8 and virtually the same size as her peers now :) Before GH she was TINY!! Our WHS daughter in NZ is growing really well since starting growth hormone at 3years. She’s now 8 and virtually the same size as her peers now :) Before GH she was TINY!!

]]> Comment on Participants Needed for Growth Research! by Melissa Grembowicz http://4p-supportgroup.org/growth-research/#comment-64 Melissa Grembowicz Tue, 10 Apr 2012 20:43:51 +0000 http://4p-supportgroup.org/?p=1575#comment-64 I am willing to give my childs information I am willing to give my childs information

]]> Comment on About Felicia by Anonymous http://4p-supportgroup.org/about-felicia/#comment-60 Anonymous Thu, 08 Mar 2012 17:06:39 +0000 http://4p-supportgroup.org/?p=818#comment-60 It was so great meeting Vincent last Saturday. You are truly blessed. He's a great kid. I'm glad I found this website because I'm interested in learning more about 4P. I hope to see you guys again real soon. Please let us know when you're in town. Bree It was so great meeting Vincent last Saturday. You are truly blessed. He’s a great kid. I’m glad I found this website because I’m interested in learning more about 4P.
I hope to see you guys again real soon. Please let us know when you’re in town.

Bree

]]> Comment on WHS Awareness Car Magnets – Reserve Yours Now! by Eva Viera http://4p-supportgroup.org/whs-awareness-car-magnets-reserve-yours-now/#comment-56 Eva Viera Sun, 26 Feb 2012 23:22:32 +0000 http://4p-supportgroup.org/?p=1680#comment-56 I would like to have 3, plz! I would like to have 3, plz!

]]> Comment on About Jackie by Amanda http://4p-supportgroup.org/about-jackie/#comment-48 Amanda Wed, 08 Feb 2012 14:59:19 +0000 http://4p-supportgroup.org/?p=837#comment-48 Robin, I emailed you the names and contact info for a few families near you who would like to hear from you and possibly meet. If you don't get my email please contact me at president@4p-supportgroup.org. Jackie will be in touch too. We're so happy to hear from you. Thanks! Robin, I emailed you the names and contact info for a few families near you who would like to hear from you and possibly meet. If you don’t get my email please contact me at president@4p-supportgroup.org. Jackie will be in touch too. We’re so happy to hear from you. Thanks!

]]> Comment on About Jackie by Robin M Menzie http://4p-supportgroup.org/about-jackie/#comment-46 Robin M Menzie Tue, 07 Feb 2012 21:58:30 +0000 http://4p-supportgroup.org/?p=837#comment-46 Hi Jackie, My name is Robin. I live in Racine,WI.I have twin boys born with whs.they were born march of 1998.i would love for u to help me contact other families in my area.thank you! Hi Jackie,

My name is Robin. I live in Racine,WI.I have twin boys born with whs.they were born march of 1998.i would love for u to help me contact other families in my area.thank you!

]]> Comment on Craig Richardson: A Life Worth Living, With Disabilities by Craig Richardson: A Life Worth Living, With Disabilities http://4p-supportgroup.org/craig-richardson-a-life-worth-living-with-disabilities/#comment-25 Craig Richardson: A Life Worth Living, With Disabilities Tue, 25 Oct 2011 03:31:39 +0000 http://4p-supportgroup.org/?p=1063#comment-25 [...] Craig Richardson: A Life Worth Living, With Disabilities Tags: Social Issues, Becky RichardsonCraig, patient care, coping strategies, neediness, support group, gratitude [...] [...] Craig Richardson: A Life Worth Living, With Disabilities Tags: Social Issues, Becky RichardsonCraig, patient care, coping strategies, neediness, support group, gratitude [...]

]]> Comment on An Amazing Connection Made by Anonymous http://4p-supportgroup.org/yin-robby-and-elizabeth-story/#comment-18 Anonymous Thu, 18 Aug 2011 04:58:46 +0000 http://wolf-hirschhornsyndrome.com/?p=67#comment-18 Hi! Thanks Amanda and Yin!! The help and support I received is really awesome!! Loved meeting Elizabeth and Jimmy that day...x Hi! Thanks Amanda and Yin!! The help and support I received is really awesome!! Loved meeting Elizabeth and Jimmy that day…x

]]> Comment on An Amazing Connection Made by Anonymous http://4p-supportgroup.org/yin-robby-and-elizabeth-story/#comment-17 Anonymous Sat, 13 Aug 2011 21:11:08 +0000 http://wolf-hirschhornsyndrome.com/?p=67#comment-17 Amanda, thank you for putting us in touch with Margaret. We have met twice already, the first visit was brief but the second visit was great. We also met up with the 4P- family who I said I approached in Hong Kong "on the street", they are not on the list serve. It was a good meeting, the group often describes our group of parents/members as "family" and that's really what it is. A group of strangers get-together but yet feel they have so much in common and instantly want to share so much and be supportive and helpful. Amanda, thank you for putting us in touch with Margaret. We have met twice already, the first visit was brief but the second visit was great. We also met up with the 4P- family who I said I approached in Hong Kong “on the street”, they are not on the list serve. It was a good meeting, the group often describes our group of parents/members as “family” and that’s really what it is. A group of strangers get-together but yet feel they have so much in common and instantly want to share so much and be supportive and helpful.

]]> Comment on An Amazing Connection Made by Amanda http://4p-supportgroup.org/yin-robby-and-elizabeth-story/#comment-14 Amanda Sun, 31 Jul 2011 15:59:51 +0000 http://wolf-hirschhornsyndrome.com/?p=67#comment-14 Update- We were able to connect this family with another WHS family who lives near them in Hong Kong. They have emailed, spoken on the phone and are making plans to meet soon. There is nothing like meeting other WHS families and through our registry we are able to help families connect with one another. If you haven't registered yet you should consider doing so now! Update- We were able to connect this family with another WHS family who lives near them in Hong Kong. They have emailed, spoken on the phone and are making plans to meet soon. There is nothing like meeting other WHS families and through our registry we are able to help families connect with one another. If you haven’t registered yet you should consider doing so now!

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