Holiday Home Decor Fundraiser

We’ve added another great fundraiser for the holiday season!












Get your holiday decor from Lynch Creek Farm Fundraising. They will donate 20% of your purchase to the 4p- Support Group. The line has expanded this year to include fall wreaths and centerpieces too… perfect for your Thanksgiving! ???? They also make excellent gifts!!!

This fundraiser ends on December 17th.



Support the 4p- Support Group during the Season of Giving!

AmazonSmile is a simple and automatic way for you to support the 4p- Support Group every time you shop, at no cost to you. When you shop at, you’ll find the exact same low prices, vast selection and convenient shopping experience as, with the added bonus that Amazon will donate a portion of the purchase price to the 4p- Support Group.  Simply go to from the web browser on your computer or mobile device. You may also want to add a bookmark to to make it even easier to return and start your shopping at AmazonSmile.










Introducing our new Bravelets!

This holiday season consider our bravelets, a unique gift, for your wife, husband, daughter, son, family member or friend who is affected by 4p-. There are several styles to choose from and are embellished with our blue color.

They are designed to be a reminder to be brave in the toughest of times! Plus, $10 per item purchased is donated back to the 4p- Support Group which makes them a gift to feel good about giving.



Personalized Holiday Cards

This year, send a holiday card you can customize with your own photos

while supporting the 4p– Support Group!













In just a few easy steps you can create a festive and unique card to send to your friends, family, clients and more!!!

1. Choose your card layout at – a single photo or a collage of photos.

2. Design* the font of your card with your own photos and personal message. You can change everything and anything on the front of the flat card. They have all kinds of themes — fall, birthday, baby announcements, thank you cards, holiday, and more!  They also make great year end thank you cards for businesses to send to clients too.  The back of the card will proudly display the 4p– Support Group’s mission statement, logo and group photo.

3. At checkout, be sure to use this promo code to get 50% off your order:   CARDS4CAUSES

4. Picaboo will then donate 50% of the proceeds from your order to the 4p– Support Group.

5. Your cards and envelopes will be shipped directly to you!


This year, let your holiday card share even more cheer by raising awareness for 4p-/Wolf-Hirschhorn Syndrome and the 4p– Support Group. You’ll be spreading the word about the organization you love and supporting our programs at the same time!



*An instructional video is also included in the link above.


Click HERE for a .pdf flyer about this fundraiser that you can print or/and email to friends and family!



2017 Memorial

As a continued tradition at Kammy’s Kause, we will be remembering and celebrating individuals with 4p- who have received their wings.  The annual memorial ceremony at Kammy’s Kause will take place on August 19th.

To ensure we included your child or loved one please fill out the form below.  If you have submitted your child’s name in the past, you do not need to resubmit their name.  You do not need to attend the ceremony in order for us to honor your loved one’s memory.

Your Name (required)

Email (required)

Phone Number

Address (required)

City (required)

State/Providence (required)

Zip/Postal Code (required)

Country (required)

Child's First and Last Name (required)

Date of birth (required)

Date of death (required)


2016 Holiday Sale

We are pleased to offer our annual holiday sale, with an additional one day only sale on Cyber Monday!!!!

On Cyber Monday, November 28th, take 44% off our store items*. Use code – cyber44 – at checkout.

November 18th through December 14th, enjoy a 20% off discount on our store items*.  Use code – 4pholiday – at checkout.

Start shopping now!  Go to our STORE!


*Offer not valid on our new sweatshirts (pre-order coming soon), clearance and sale items, and cannot be used on items available through our Zazzle and Bravelets stores.

2016 4p-/WHS Awareness Day



















We are so excited to share this with you all!!! This year we have created our social media profile picture templates for International 4p-/Wolf-Hirschhorn Syndrome Awareness Day using this one-of-a-kind work of art painted exclusively for the 4p- Support Group by the amazingly talented artist, Miranda Thomas.

We asked you to provide us with a word that best described your child with 4p-, as well as their favorite color. We were thrilled with the responses we received. Miranda took the list we compiled to create this masterpiece which captures many of the attributes of persons diagnosed with 4p-/Wolf-Hirschhorn Syndrome. Sit back and read through all the words, and take in the beauty of all the many colors!

****This one-of-a-kind painting on canvas is up for AUCTION**** 


We are working to transform this painting into posters that you can purchase and hang up in your child’s bedroom, your office… whatever you want to be inspired by the spirit of 4p-.

If you live in the Indianapolis area, we encourage you to visit Miranda at Painting with a Twist in Carmel, IN. Not only does Miranda love creating art, but she also is passionate about helping others discover their own artistic talents, in a fun, friendly, no-pressure environment. So stop by sometime and take one of her classes. You can also meet Miranda in the art booth area at Kammy’s Kause.


Research Participants Needed!

Exciting News! 4p- Support Group has partnered with researchers from the University of Utah and Lineagen, Inc. to evaluate the effectiveness of different seizure treatments for people with WHS. Approximately 90% of people with WHS have seizures. While there are guidelines for seizure treatment for people with other genetic conditions, such guidelines do not exist for WHS.

Press Release!

Lineagen Announces Identification of New Genetic Region Associated with Seizures in Wolf-Hirschhorn Syndrome.  Click here to read full press release and research article.


Rock What You Got T-shirts












Join the “Rock What You Got” movement!

Shirts are $15/each and 50% of the proceeds from each sale will go directly to our support group! 

Order yours now!

Site Design by: