2016 Profile Template

 

 

 

 

 

 

 

 

 

 

 

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Research Participants Needed!

Exciting News! 4p- Support Group has partnered with researchers from the University of Utah and Lineagen, Inc. to evaluate the effectiveness of different seizure treatments for people with WHS. Approximately 90% of people with WHS have seizures. While there are guidelines for seizure treatment for people with other genetic conditions, such guidelines do not exist for WHS.

Press Release!

Lineagen Announces Identification of New Genetic Region Associated with Seizures in Wolf-Hirschhorn Syndrome.  Click here to read full press release and research article.

 

View Our 2016 National Conference Brochure

Click on the page if you would like to view it in a larger screen with interactive links.

 

To view the interactive brochure, click HERE.

Rock What You Got T-shirts

 

 

 

 

 

 

 

 

 

 

 

Join the “Rock What You Got” movement!

Shirts are $15/each and 50% of the proceeds from each sale will go directly to our support group! 

Order yours now!

GivingTuesday

We have a day for giving thanks. We have two for getting deals. Now, we have #GivingTuesday, a global day dedicated to giving back. On Tuesday, December 1, 2015, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give.  The 4p- Support Group has joined #GivingTuesday and we are asking for your support.

2015 Kammy’s Kause Online Art AuKtion

 

 

 

 

 

 

 

 

 

In order to spread more awareness about our event and 4p- syndrome, we are opening up the artwork, created by individuals who have 4p- syndrome, for both onsite and offsite bidding!

Even if you will be attending Kammy’s Kause in person this year, we highly encourage you to place your bids online if you have a SmartPhone. Once you’ve placed your bid amount, you will be notified if you’ve been outbid. You can also set a maximum bid amount and allow the site to submit proxy bids for you that way if your lowest bid is outbid by another bidder it will increase it for you up to your maximum bid amount.  Onsite and online bidding will take place on Saturday August 29th beginning at 12:00pm EST and ending at 9:00pm EST. So be sure to sign-up and bookmark our auKtion page:

http://www.32auctions.com/kammyskause2015.

Let the bidding begin!

 

Kammy’s Kause 2015 – Aug 28th-29th

Shopping Pass Purchase

Thank you for your Shopping Pass purchase!

Your $5 Savings Pass(es) will be mail to the address you provided during check-out.
If you have any questions, please contact Felicia van Dyk at
Secretary@4p-supportgroup.org.
Thank you for your support!

 

Region 5 Gathering in OR

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