Support the 4p- Support Group during the Season of Giving!

Support the 4p- Support Group during the Season of Giving!

 

 

 

 

 

 

 

If you plan to order holiday cards this year, you can shop your favorite online retailer while also helping support the 4p- Support Group. Simply join iGive.com and select the 4p- Support Group, a 501c3 charitable organization, and participating online store will donate a portion of your purchase amount back the to 4p- Support Group. Download the app and you will never miss an opportunity to support the 4p- Support Group when making purchases online.

Join our iGive cause now at: https://www.iGive.com/4p-SupportGroup

Here are some top online stores to consider if purchasing holiday cards.
www.picaboo.com donates 6%
www.snapfish.com donates 4%
www.vistaprint.com donates 3.2%
www.walmart.com donates 1.6%
www.staples.com donates 1.6%
www.walgreens.com donates 1.6%

To show your support even further, consider printing out our “I am a proud supporter” label templates and adhering them to the backs of your cards.  (When printing be sure to print actual size. Do not fit to scale.)

 

 

 

 

 

 

4″x1″ labels

4″x2″ labels

 

 

 

 

AmazonSmile is a simple and automatic way for you to support the 4p- Support Group every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase price to the 4p- Support Group.  Simply go to https://smile.amazon.com/ch/91-2005528 from the web browser on your computer or mobile device. You may also want to add a bookmark to smile.amazon.com to make it even easier to return and start your shopping at AmazonSmile.

2016 Holiday Sale

We are pleased to offer our annual holiday sale, with an additional one day only sale on Cyber Monday!!!!

On Cyber Monday, November 28th, take 44% off our store items*. Use code – cyber44 – at checkout.

November 18th through December 14th, enjoy a 20% off discount on our store items*.  Use code – 4pholiday – at checkout.

Start shopping now!  Go to our STORE!

 

*Offer not valid on our new sweatshirts (pre-order coming soon), clearance and sale items, and cannot be used on items available through our Zazzle and Bravelets stores.

2016 Sponsors

2016 Memorial

As a continued tradition at Kammy’s Kause, we will be remembering and celebrating individuals with 4p- who have received their wings.  The annual memorial ceremony at Kammy’s Kause will take place on August 20th.

We also have plans to include a memorial during our 2016 National Conference.

To ensure we included your child or loved one please fill out the form below.  If you have submitted your child’s name in the past, you do not need to resubmit their name.  You do not need to attend the ceremony in order for us to honor your loved one’s memory.

Your Name (required)

Email (required)

Phone Number

Address (required)

City (required)

State/Providence (required)

Zip/Postal Code (required)

Country (required)

Child's First and Last Name (required)

Date of birth (required)

Date of death (required)

 

Welcome to the 4P- Support Group

2016 4p-/WHS Awareness Day

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

We are so excited to share this with you all!!! This year we have created our social media profile picture templates for International 4p-/Wolf-Hirschhorn Syndrome Awareness Day using this one-of-a-kind work of art painted exclusively for the 4p- Support Group by the amazingly talented artist, Miranda Thomas.

We asked you to provide us with a word that best described your child with 4p-, as well as their favorite color. We were thrilled with the responses we received. Miranda took the list we compiled to create this masterpiece which captures many of the attributes of persons diagnosed with 4p-/Wolf-Hirschhorn Syndrome. Sit back and read through all the words, and take in the beauty of all the many colors!

****This one-of-a-kind painting on canvas is up for AUCTION**** 

 

We are working to transform this painting into posters that you can purchase and hang up in your child’s bedroom, your office… whatever you want to be inspired by the spirit of 4p-.

If you live in the Indianapolis area, we encourage you to visit Miranda at Painting with a Twist in Carmel, IN. Not only does Miranda love creating art, but she also is passionate about helping others discover their own artistic talents, in a fun, friendly, no-pressure environment. So stop by sometime and take one of her classes. You can also meet Miranda in the art booth area at Kammy’s Kause.

 

2016 Cover Template

Your Name (required)

Your Email (required)

Your Photo

2016 Profile Template

 

 

 

 

 

 

 

 

 

 

 

Your Name (required)

Your Email (required)

Your Photo

Research Participants Needed!

Exciting News! 4p- Support Group has partnered with researchers from the University of Utah and Lineagen, Inc. to evaluate the effectiveness of different seizure treatments for people with WHS. Approximately 90% of people with WHS have seizures. While there are guidelines for seizure treatment for people with other genetic conditions, such guidelines do not exist for WHS.

Press Release!

Lineagen Announces Identification of New Genetic Region Associated with Seizures in Wolf-Hirschhorn Syndrome.  Click here to read full press release and research article.

 

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