My daughter, Lauren, was diagnosed with WHS when she was almost 2 years old. Lauren does not have the noticeable facial characteristic associated with WHS. Prior to her diagnosis, I was told by her physician there was no medical reason she was unable to reach her milestones or why she was unable to gain weight. I was even told it was a case of Munchausen Syndrome, meaning I was reporting fictitious symptoms and I was not feeding her enough to enable weight gain as a way to get attention. With her diagnosis came knowledge and a better understanding of what her future may be, and a commitment to ensure doctors begin thinking “outside the box” about genetic disorders. I began searching out doctors and other parents to connect with. My husband, Lauren and I attended our first National Conference in 2006 where I was elected as Secretary. At the 2008 National Conference I was elected as President by the membership. Now in 2013 I am serving my second term. I have met well over 100 children and adults with 4p- so far and I look forward to meeting 100 more.