2017 Gatherings

As always, the 4p- Support Group’s regional gatherings are FREE to members of the 4p- Support Group.  4p-/WHS parents who are not members of the 4p- Support Group are also welcomed to attend.  Families can attend any gathering in the country that they would like.  You do not have to live a particular region in order to attend that region’s gathering. Please note, extended family members and friends may need to pay for their costs depending on what activities have been planned.

This page is currently under construction as we add information about each gathering, so please check back often. For the most up-to-date information, please visit our event page on Facebook too!

 

REGION 1

(ME, VT, NH, CT, PA, DE, MA, NY, RI, NJ, QC, NB)

Hosted by The Hunter Family

Come for lunch, good conversation, support and friendship for 4p-/WHS families. If you are able, please bring a dessert to share.

Please RSVP for this event by July 10th so we can plan accordingly, including how many people will be attending and if you are able to bring a dessert to share.

To RSVP or for questions:
Laurie Hunter
(732) 905-8464

Kona Johnson
trevscarman@gmail.com

 

REGION 2

(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)

The Region 2 Gathering will be held on
Saturday June 10th, from 10 am – 12:30 pm

At Purposeful Refuge
259 Mitchell Rd
Purvis, MS  39475

Food will be provided and the kids will have the opportunity to do some therapeutic riding with horses, as well as meet the animals in the petting zoo.
Hosted by Jessie Jenkins and Family
You must RSVP for this event by May 27th so we can plan accordingly.

To RSVP or for questions:
Jessie Jenkins, Region 2 Director
region2@4p-supportgroup.org

 

REGION 3

(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, ON)

Brukner Nature Center
5995 Horseshoe Bend Road
Troy, OH 45373

Hosted by The White Family

Come for a pot-luck, good conversation, support and friendship for 4p-/WHS families. There is a large indoor meeting room that we have reserved, as well as outdoor trails, and there will be a approx. half hour wildlife presentation put on by the nature center as well.

Depending on interest, we may have a bonfire at our home in the evening if some people are staying in town overnight; but I’m not sure about this yet, as our house is not accessible. I’m considering another evening venue possibility, if there is interest. (*See note below.)

You must RSVP for this event by June 2nd so we can plan accordingly, including how many people will be attending and what pot-luck item you can bring. Matt and Heather will fill-in what’s still needed for lunch. Also – when you RSVP – let us know whether you might be spending the night at a local hotel, I can then get in touch with you with a few suggestions if you want, and determine whether there’s interest in doing something in the evening as well.

To RSVP or for questions:
Heather White, Region 3 Director
region3@4p-supportgroup.org

For families who are looking for something else to do while in the area for the weekend, the Air Force Museum is not too far away, in Dayton. It’s really cool, and totally free. This is not an official part of the gathering, but an optional something to see while in the area for those who are traveling.
http://www.nationalmuseum.af.mil/Visit/Hours-and-Admission/

 

REGION 4

(TX, LA, OK, AR, MO, KS, CO)

The Region 4 Gathering will be held on
Saturday, July 15th, from 11 am – 6 pm

At the Hotel Magnuson Grand Conference Center
3310 Troup Highway, Typer, TX  75701
http://www.magnusonhoteltyler.com/

Lunch will be catered by a nearby restaurant and provided and at no cost to the families.
Discounted room rates will be $89 a night can be extended up to 3 nights.
Free hot breakfast in the morning for guests staying at the hotel.
Contact Mike Nasser Hotel Manager for Reservations. Room rates are under “4p-/Wolf Hirschhorn”.

Hosted by Sylvia Renfro and Family
You must RSVP for this event by June 15th so we can plan accordingly.

To RSVP or for questions:
Sylvia Renfro, Region 4 Director
region4@4p-supportgroup.org

 

REGION 5

(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)

Come for a backyard BBQ in a spacious backyard with pool and hot tub, good conversation, support and friendship for 4p-/WHS families.
Hosted by The Harris Family
You must RSVP for this event by June 5th so we can plan accordingly.

To RSVP or for questions:
Jessica Franklin, Region 5 Director
region5@4p-supportgroup.org

 

REGION 6

(HI, CA, AZ, NV, NM)

The Region 6 Gathering will be held on
Saturday August 5th, from 11 am – 4:00 pm

Lake Forest Beach & Tennis Club
22921 Ridge Route Dr
Lake Forest, CA 92630

It’s that time again for all of us to get together and enjoy each other’s company!! I can’t wait to see how much all of our kiddos have grown and meet new families in our area!! We will be having a pot-luck style lunch so when RSVP’ing, please let me know if you can bring something to share!
.
Hosted by Tanja Trainer
You must RSVP for this event by July 25th so we can plan accordingly, including how many people will be attending and if you can bring a pot-luck item.

To RSVP or for questions:
Tanja Trainer, Region 6 Director
region6@4p-supportgroup.org
H) 949-206-1444
C) 949-338-0637

Para informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes a (818) 468-8671. Gracias.

 

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