2013 Gatherings

As always, the 4p- Support Group’s regional gatherings are FREE to members of the 4p- Support Group.  4p-/WHS parents who are not members of the 4p- Support Group are also welcomed to attend.  4p- children and their families are welcome to attend as many, and any of the gatherings that are taking place throughout the country.  Please note, extended family members and friends may need to pay for their costs depending on what activities have been planned.

Visit our event page on Facebook too!



(ME, VT, NH, CT, PA, DE, MA, NY, RI, NJ, QC, NB)

The Region 1 gathering will take place at the Parish of St. Elizabeth Ann Seton in Bear, Delaware.

Lunch will be served. Events for the day are still being planned. More information to come.

To RSVP or for questions:
Brianna Hauck, Region 1 Director



(WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD)

Date to be announced soon.

The Region 2 Gathering will be hosted by Lance and Tiffany Miller in Tuscaloosa, AL on a Saturday sometime in June.

Optional dinner Friday night for meet and greet. Each guest will be responsible for their own bill.

Saturday’s gathering will be held at the RISE in the ADA accessible common area.  Tentatively, the schedule will be:  breakfast, discussion time, a catered lunch, followed by another discussion time.

Lance and Tiffany request that you RSVP for this event as much planning will be necessary.
RSVP region2@4p-supportgroup.org or 205-242-3881.



(ND, SD, NE, IA, MN, WI, IL, OH, MI, IN, MB, on)


Make plans to join us for a 4p- family retreat June 7th to June 9th!  The retreat will take place at Deer Creek State Park Lodge and Conference Center at 20635 State Park Road 20, Mount Sterling, Ohio, 43143.

Get Directions: http://mapq.st/W44pzH.

To RSVP, please email president@4p-supportgroup.org and region3@4p-supportgroup.org so we can send you a registration form.  If you end up needing to cancel your registration please let us know ASAP.

For more information please see our Facebook event page: https://www.facebook.com/events/210716412408062/

For Questions please email region3@4p-supportgroup.org.



This Region 3 gathering will take place at Steve and Kathy Sjodin’s home in Ham Lake, MN.

Lunch will be served.

To RSVP or for questions:
Bryan Binstock, Director at Large – dal1@4p-supportgroup.org
Steve and Kathy Sjodin – kssjodin@aol.com



(TX, LA, OK, AR, MO, KS, CO)

The Region 4 Gathering will take place on July 20th at 11am at Fleming’s house in Wylie, TX.

Lunch will be served.

To RSVP or for questions:
Betty Fleming, Region 4 Director



(WA, OR, AK, MT, WY, UT, ID, BC, AB, SK)


This gathering in Salt Lake City, UT will be taking place early in the spring instead of the summer.

The gathering will take place at Lineagen’s office.  There will be a brief presentation by Drs. Battaglia and Carey, experts in 4p-/WHS, followed by a meet and greet. Lineagen genetic counselors will also be available for any families who wish to have CMA testing done through the 4p- Support Group & Lineagen Clinical Partnership. (Please bring an updated version of your child’s 4p- Biographical Form and your insurance card if you are interested.  Bio Form can be found here.)

Note: On Saturday morning at 10am there is a St. Patrick’s Day parade at the Gateway Center (Downtown) followed by a Siamsa (Irish festival with food, live music and dancing). If families who are coming are also interested in meeting up at this event let us know!

To RSVP and for questions please contact:

Tad Tidwell, Director at Large
Please text to 801-310-6804


Mallory Sdano


The Region 5 Gathering will take place on June 22nd at the Shockley’s house in Silverton, OR from 12pm-3pm.  Activities planned are a backyard BBQ, play structure, trampoline, good conversation, support and friendship for WHS families in this area.

Please RSVP or for questions:
Caitlin Shockley, Region 5 Director
region5@4p-supportgroup.org or 503-881-9814



(HI, CA, AZ, NV, NM)

The Region 6 Gathering will be held June 29th starting at 11:00 a.m. and going till evening. It will take place at the Kidspace Children’s Museum in Pasadena, CA. located at 480 North Arroyo Blvd. Pasadena, CA 91103. Following is the link to the website. This event is free to immediate 4p- family members. Extended family members and friends attending will be asked to pay for their costs. Afterwards, I will have a get together at my home which is approximately 9 miles away. Lunch at the museum and dinner at my house will be provided. Thank you and hope to see you there.


To RSVP or for more information please contact Denise Barnes at
818-468-8671 or email at region6@4p-supportgroup.org.

Para informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes a (818) 468-8671. Gracias.


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